Resources

Breast Cancer: General Information

The Irish Cancer Society

The Irish Cancer Society website carries information on different aspects of breast cancer. The freephone line is manned by trained nurses.

Phone: 1800 200 700
Website: www.cancer.ie

Breast Cancer Now

Formerly Breakthrough Breast Cancer, Breast Cancer Campaign and Breast Cancer Care, Breast Cancer Now has useful explanations of the biology of breast cancer and information on other aspects of the disease and its treatment

Website: www.breastcancernow.org 

National Cancer Institute

The National Cancer Institute is a US site with detailed information on breast cancer.

Website: www.cancer.gov/cancertopics/types/breast

Statistics/Epidemiology

National Cancer Registry Ireland

The National Cancer Registry collects statistics on Incidence, Mortality, Treatment and Survival for different cancers and publishes annual reports, with the most up-to-date statistics. The NCRI has also produces joint statistics with Northern Ireland and carries out research, which is published, and can be downloaded from the website.

Website: www.ncri.ie

Risk

Breast Cancer Now

The What causes breast cancer? leaflet lists established, possible and doubtful risk factors. This can be downloaded from the Breast Cancer Now website.

Website: www.breastcancernow.org

 

WCRF/AICR 2nd Expert Report:

Food, Nutrition, Physical Activity, and the Prevention of Cancer: a Global Perspective (2007)

Website: www.aicr.org

 

Diagnosis and Treatment

Screening

BreastCheck

BreastCheck is the national breast screening programme which currently screens women every 2 years between the ages of 50 and 67. The BreastCheck website has information on breast screening.

For the BreastCheck Women’s Charter, see www.breastcheck.ie/

European Commission

The European Commission made a recommendation in 2003 that all member states provide breast screening services for women aged between 50 and 69 (as well as colo-rectal and cervical screening). For progress and information on the situation in member states, see: Cancer screening in the EU: report on the implementation of the Council recommendation on cancer screening (2008)

 

Standards

Diagnosis and treatment carried out according to best practice standards have been shown to result in significantly higher survival rates. EDI has two publications relevant to standards:

Irish Breast Cancer Charter

Irish Breast Cancer Charter Sets down 23 principles which specialist breast centres across the country should meet. The Charter is the result of discussion by over 150 women at Europa Donna Ireland's 1st National Conference held in May 2006 and is designed to give women in Ireland standards by which to measure services.

 

Specialist Breast Centres

Specialist Breast Centres Explains why it is important for women with breast problems to attend a specialist centre, what they are, the service they provide and where they are.

 

National Quality Assurance Standards for Symptomatic Breast Disease May 2007

These standards form the basis for the development of Specialist Breast Centres in Ireland and will be used by HIQA to accreditate the centres.

Download PDF: National Quality Assurance Standards for Symptomatic Breast Disease May 2007

Short Guide to the European Guidelines (EUROPA DONNA, October 2007).

A copy can be downloaded from the ED website www.europadonna.org

The European Guidelines for Quality Assurance in Breast Cancer Screening and Diagnosis. 4th edition (European Commission, 2006) set European standards for mammography screening, diagnosis and specialist breast units.

Research & Clinical Trials

Controlled clinical trials are the safest way to evaluate new medicines and procedures that may be valuable in predicting and treating breast cancer. It may be of benefit to a woman with breast cancer to be part of a clinical trial that is relevant to her particular diagnosis and circumstances. EUROPA DONNA – The European Breast Cancer Coalition publishes booklets Clinical Trials and Breast Cancer, Advocates Guide to Understanding Breast Cancer Research, and Exploring the Role of Advocates in Breast Cancer Research. These can be read on or downloaded from the ED website www.europadonna.org/research .

Clinical Trials Ireland (CTI)

CTI is leading cancer research trials organisation in Ireland. Ongoing research projects/trials are listed on the CTI website.

Website: www.cancertrials.ie

Biobank Ireland Trust

Biobanks aid research by maintaining ‘banks’ of tumour tissue to be used in research and nowadays you may be asked to give permission for use of your tissue before you have an operation. Biobank Ireland is an Irish biobanking project and the site explains the project.

Website: www.biobankireland.com

 

Younger Women

The sites listed in the General Information section above have relevant information. Also see:

  • The Irish Cancer Society has information for younger women at www.cancer.ie/

There are some organisations which deal specifically with younger women and breast cancer:

Breast Cancer and Fertility, published by EDI in 2007, covers the topic in an Irish context. It has been prepared by health care professionals with specialist knowledge in the area of breast cancer and fertility, but may now be somewhat out-of-date.

Genetic/Familial Breast Cancer